Isabelle woke up at midnight having to go to the bathroom. It was just a little bit of diarrhea, so that was good. She had a hard time sleeping because she was battling with her tubing. She kept getting tangled in it and she was beeping half the night. The way she likes to sleep on her arm, blocks the IV fluid from getting in, so she kept beeping. The nurse and I all through the night kept having to reposition her. At 7 am she woke up and had a small amount of diarrhea. She ate a few bites of bread and pretty much slept until 3 in the afternoon. She woke up for a couple minutes at a time through the day, but was nautious and could not eat anything and did not want to drink.
They said her sodium level was low, so they swapped her fluids to a high sodium based one. They rechecked it and it was about the same, but they also have to give her a blood transufion, so they are going to see if that helps any with the sodium levels as well. They said a side effect of the chemo is loss of sodium in the urine, so we are waiting for her to pee again in order for them to test it. (She has only went pee twice today) She has been wore out all day and they are hoping with the blood that she feels better. When she had the diarrhea they said she lost a lot of sodium that way too. They are probably going to keep us overnight again because its going to take about 3 hours for the blood to transfuse and they still have to wait to make sure she is able to eat and drink. She is a little more alert now and less dizzy. (She couldn't stand earlier without almost falling over) Her hair is all over the bed, sheets, and pillow case. You can see it thinning in the front quite a bit and she has a couple bald spots now.
They are supposed to get her wig in sometime this week. I still need to look and find her some soft knit hats to help keep her head warm for night-time. I also need to get some hats, so she can play in the backyard once shes feeling good without getting sun burnt. (just in case she doesn't like the wig)
10 pm update- Well, they checked her sodium after the transfusion and it is still low. They increased the amount of saline fluid that she is getting. They said they are more concerned with low sodium levels than her eating. The low sodiums could cause all kinds of bad things, including seizures. They said she may be full because all of the fluids that shes getting. She was complaining of jaw pain when she tried to eat some dinner (which could have been from chemo) and she threw up the medicine that she took. We cleaned her up and they gave her medicine for her tummy. When it was time for her weekend medicine, she threw part of it up. Now she seems like shes feeling a little better. She is wide awake, but then again she was asleep until basically 3 in the afternoon. I'm so tired. Tomorrow Abel is coming with Sabrina and we are going to switch out tomorrow. As hard as its going to be to leave my Isabelle, I haven't seen my Sabrina for a whole day. When I saw her yesterday it was only for a few hours and it was a stressful visit. Abel hasn't had any time with Isabelle either, so it will be good to switch out.

No comments:
Post a Comment