4th day home

She was feeling pretty good today and had quite a few spirts of energy today. The steroid side effects are kicking in and she ate a lot today. Tomorrow morning we have a long day at the clinic. I'm very nervous about how tomorrow will go. They said expect to stay there all day. My dad is going to watch Sabrina for us while we go bright and early.

We had to take Sabrina to the doctor today because she pulled her elbow out. The doctor put it back in with no problem and shes using it just fine now. The doctor said that we will have to watch it because kids who pull their elbows out of sockets can easily do it again. If it happends again then they will have to put a cast on it, so it can heal. At least that is all that has happened.

 I wanted to thank everyone who has helped us out and offered to help it def. means a lot. There doesn't seem to be enough time in the day,  we are very grateful.

Insurance is already sending us stuff and we just left the hospital Friday. Going to apply for this financial assistance with NCCS when I get a chance. So many bills coming our way between hospitalization, surgery, all kinds of specialists (cardiologist, radiologist ect.), outpatient visits (we are going there at least twice a week), and "procedure" costs. Thank goodness we have blue cross and blue shields. I know just with the past 2 weeks its going to be around $2000 rough estimate. Thats great seeing how our hospitalization copay is capped at $750 per hospitalization.

Isabelle is allowed to play outside if the temperature is 60 or higher. (not at the park or anywhere there is people) If shes feeling well, Wed. and Thurs. are supposed to be nice days and we wanted to take her out for a stroll in her step 2 buggy. Friday shes not going to feel well after her "procedure" and chemo so I really want to take advantage if she is feeling good.

Last night I was able to give her an actual shower because the holes in her back are closed. Her back has little holes and bruises everywhere. She also has red marks, where the bandages have ripped off her skin. We tried loosing the bandages with alcohol wipes like the nurses said, but it still left marks.