6/12/2011 Hosptialized once again

6/11/2011 - Isabelle was not feeling well and had a fever. The doctor on call said to bring her to the er and they would give her some antibiotics and check her blood counts. Since her white blood counts were 1500 on Tuesday and they seemingly were going up, they expected her to be in and out. Abel took her since she was in a good mood and it was supposed to be a quick thing. When he got to the er side they checked her blood counts and started her on the antibiotics. As it turns out, her white blood count dropped to 50, so she had to be admitted.
           While in the er, it took them 2 tries to access her port. (She felt it and it hurt, normally she doesn't feel a thing) She became so distraught that she threw up all over Abel and the nurse. The nurse got Abel some scrubs to wear. The physician wanted to give Isabelle medicine for the nausiousness that is NOT supposed to be taken with the nausious medicine that shes on. Abel let him know that she couldn't take it and why. Being on the er side is so annoying because they don't specialize in Isabelle's condition, so they really don't know what to do with her. They had it on her med chart what she was taking and they should have known that it couldn't be taken with that other medicine. If Abel hadn't spoken up, they would have possibly caused her damage.
             They were able to get Abel a room with 2 beds on the oncology side which was nice. Isabelle was due for tylenol while Abel was waiting for me to get there so he had requested them to give her some. By the time I had gotten there, 2 hours later, they still did not have the tylenol. The resident doctor came over to speak with us and she said she would get the medicine for us. Meanwhile, Isabelle has a fever and feels HORRIBLE. Another hour goes by and I call the nurse. It is a new nurse, apparently they did a shift change and no one told our new nurse that Isabelle was due for tylenol. The new nurse then tells me that they are out and that it will take about a half an hour to get it because she has to get it from the other side of the hosptial.
             They gave Isabelle an iv drip because she has not been eating. She ate one slice of bread all day and one cup of milk. She had an accident at like 2 am and she had to be wiped down, linen changed, and we put a diaper on her.
6/13/2011 -Isabelle woke up in a great mood. Her favorite nurse Amil was woke her up by taking her blood pressure. When he asked if there was anything he could get her she said, "yes, a toy." She was very happy to see him. Isabelles WBC dropped down to 30, but she hasn't had a fever since the night before. They told us that if her WBCs show that they are going up and she has no fever for 48 hours then she can go home. Sabrina is home with Abel and is sick now. That sucks because that means they can't come and visit us. Isabelle ate one piece of bread today and drank a cup of milk. They are going to start her on an appetite stimulant since she has not been able to eat well for a while. They said it will take a week for it to go into effect. She was sleeping on her stomach and when she shifted positions she accidently ripped her port out. She started screaming and grabbing her chest, then she yelled I've got to go potty. I then had to call for the nurse and drop her on the potty. After she was done the nurse's quickly took it out, cleaned it, and hooked a new one in. It hurt her because she didn't have time to be numbed : ( but at least it was quick. She is allowed to leave the room until tomorrow because she's quarentined due to the fever she had. The art therapist came by and played with Isabelle for a while, which she enjoyed. I have been enjoying the snacks that Michelle Christine brought me. It was nice to have a visitor today. At least I've been sleeping well. Isabelle made me switch beds because there are special wall stickers on the walls by the bed she was using. They are boy stickers and she didn't want to sleep on the boy side. I am going to have to figure out how to get some wall stickers for the hospital when she comes here to stay.

6/14/200 - Isabelles WBC has dropped down to 10.8. They did a special test called an IGG on her blood and she has a low protein count in her blood. (The protein isn't a protein that you get from nutrition, it apparently helps your blood build white blood cells. Her being low on this protein would explain why her counts keep dropping. It is considered a blood bi-product.) They are going to give her a transfusion of this special protein through an iv. The resident physician told me a lot of false information, which was aggravating. I have not spoken with the doctor that is here yet to find out what is going on. We will be here for another 48 hours at least. Isabelle has eaten  3 pieces of bread so far and hopefully will eat later. The cleaning lady came in and was cleaning up our room. When she got to mopping the dirty floors, she found an earring back. Instead of asking if it was ours, she picked it up from the dirty, wet pile with her dirty cleaning gloves, and set it on the table where we set our food trays. That is so disgusting. This room obviously has not been cleaned well enough for an immune compromised child to stay in and people like that are exactly why. I hate hospitals.

6/7/2011 - 6/11/2011

6/7/2011- Isabelle had an early appointment just in case she needed a transfusion. It took 2 hours before we were even seen!! All of her counts looked good, so she didn't need any transfusions. Her white blood count was in the normal range, so she has no restrictions either. She received a chemo push of vinchristine and had a doctor check up. Next week we start a new phase of the treatment. She has to go to the clinic at 8:30 am to get a spinal tap and vinchristine chemo push. After that we have to wait for a room at the hospital to open up because she will have to be hospitalized 4-7 days. At the hospital she will receive chemo through IV for 24 hours. Then she will have to be observed and hydrated to try to push it out of her system, which is why the 4-7 day hospitalization. This is to prevent kidney and liver failure. The name of this chemo is called high dose methrotrexate. She will receive chemo pills every day for the next 56 days as well. After the hospital stay she will go one day the following week to check on her blood. The week after that she will have to be hospitalized again. She will be hospitalized 4-7 days every other week for about 2 months. (This is including after the new baby is born.)

6/8-6/11 Its been a really rough week for Isabelle as far as appetite. Everything has been making her sick, even with all the meds she's on for the nausia. I've been syringing her pediasure, which makes her sick and spoon feeding her rice. I know shes tired of throwing up and she doesn't want to try eating anything.