Day 7

Isabelle took her second shower shower this morning. She was very scared because they had to tape a bag over her port. She was also very cranky. She didn't want to do much all day, but she did do this water paint book, part of a preschool workbook, and color a little bit. She fell asleep from about 3-6ish. My mom and Sabrina came by and Isabelle perked up a little bit and played with her sister. They kept hugging and kissing each other, too cute! Most of the day they have been prepping us to go home. It's 10:36 and she is still awake, which is good because shes scheduled to go under around 10am. (that means no food and water after midnight) She is getting chemo tomorrow and bone marrow drawn to see where she's at. Later on they're giving her more chemo.

This company called flashes of hope takes free professional pictures in the hospital and they came by today. We, of course, took some. Isabelle didn't really smile, but I'm sure they came out good anyway. There was a make-up artist there that put eyeshadow on her (which she picked), blush, and lip gloss on. Isabelle was loving it. She wanted lip gloss that matched me. She said I want pink like mommy!! It was so cute, with the eyeshadow she picked a color and then was like, "mommy, is this cute?" Adorable!

Her condition right now: Shes considered neutrophenic right now, which is basically meaning that she has 0 immune system. They are probably going to send her home like that because her red blood cells and platelets are going to be decent before she leaves. (Shes getting transfusions tomorrow) Her white blood cells are very low and they can't transfuse them because it will only cause the cancer to grow. For the next at least 2.5 years she will have a constant battle of keeping her blood levels from dropping. The chemo kills the white blood cells which have a lot of the cancer cells too. What sucks is even though its killing bad cells, it kills the good ones too. It gets a lot more complicated than this, but this is the simplified version to my understanding. (It may not be worded the best) A lot of times they will be able to predict when she'll need a transfusion. For example, if they see her count is dropping day by day they can kind of guess when she'll need it.

Its overall been a bla day, Isabelle has been very low energy and a little cranky. At least today she was in pain, but she gets more chemo tomorrow so its short lived. They are going to send us home w/ prescription for tylenol w/codine and morphine pills. The worse chemo that she has is the vincristine. (don't know if i spelt it write, the correct spellings on the previous post.) Thats the one thats causing her jaw pain and joint pain. She hasn't had any mouth sores from it yet, but shes getting special mouth type wash to prevent it.