Well Abc did not air Isabelle much to our disappointment. She just kept getting bumped. They even had a commercial with her on it, but no air time. Isabelle was sick with a fever last month and was on a chemo hold the entire time. We flirted with having to be hospitalized between having low counts no fever and then high counts fever. We never had to go, which was great. Since November she has had over 2 months worth of chemo holds. In the maintenance phase, if you lose chemo time then you do not make it up. Its very scary knowing she will never get that time back. It makes me wonder if this will affect her overall recovery and if she will be more likely to relapse because of this. I would not worry about relapse as much if we didn't have our big scare in November. This experience will forever leave me paranoid.
Our monthly spinal taps have been moved to the hospital, which is good and bad. The good thing is Isabelle is fully anesthetized. The bad thing is it takes a lot longer. Her next tap is scheduled in 2 weeks and her appointment isn't until 1:30. That is all day with no food or water. We have been going to the clinic every 2 weeks since she has been having a hard time keeping counts up. The doctors lowered her chemo dose 2 weeks ago. They are wanting to go back up on it slowly.
Isabelle has been sick for the past week with a stomach virus. She just stopped having diarrhea, but is not herself. She is sleeping quite a bit, is cranky, and has lost weight. When we went to the clinic today, her counts were still great.
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